Live Web cast on Total Lung Care to Maintain Health in Cystic Fibrosis to Take Place Sept. 27

Aug. 26, 2005
From:  Darci Slaten, (520) 626-7217                                             

WEB CAST:       Total Lung Care: Feel the Difference TLC Makes  

The Cystic Fibrosis Foundation (CFF) and the Steele Children’s Research Center at The University of Arizona College of Medicine will host their first live Web cast for individuals with cystic fibrosis, as well as their parents, family members and caregivers.

This presentation is part of an ongoing program sponsored by the CFF and funded by Genentech called Virtual Patient Education Days. These Web casts bring pertinent information directly to the patient in a typical forum setting -- but because they are virtual they can be held without the risk of infection, a major concern with CF patients. Total Lung Care: Feel the Difference TLC Makes, the topic of this latest Virtual Patient Education Day, will feature cystic fibrosis experts advising how to maintain optimal well-being while living with CF.  In addition, the Internet audience will be able to ask questions.  About 1,000 CF patients and their caregivers from around the world are expected to participate via the Internet.

CF is a genetic disease affecting about 30,000 children and adults in the United States. A defective gene causes the body to produce abnormally thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. These thick secretions also obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food.
        
WHEN:   TUESDAY, SEPT. 27
                9 p.m. Eastern time; 8 p.m. Central; 7 p.m. Mountain; 6 p.m. Pacific.

WHO:

• Wayne Morgan, MD, CF Care Center director, professor of Pediatrics and Physiology, chief of Pediatric Pulmonary Section, Arizona Respiratory Center, The University of Arizona
• Joanne Douthit, RN, MN, clinical nurse specialist, Pediatric Pulmonary Section, Arizona Respiratory Center, The University of Arizona
• Glenda Drake, RRT, respiratory care practitioner, University Medical Center

REGISTRATION:   To register and log on, go to the CF Foundation website, www.cff.org or www.cfwebcast.org and click on the Virtual Patient Day icon. 

To view the Web cast, your computer must have Windows Media Player, version 8.0 or higher.  To download Media Player, go to:
www.microsoft.com/windows/windowsmedia/mp10/default.aspx

CONTACT:        Leslie Hazle
                        Cystic Fibrosis Foundation
                        301-841-2667
                        lhazle@cff.org

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Susan Guthrie
Senior Public Affairs Coordinator
University of Arizona, College of Medicine
Phoenix Campus
4001 N. Third Street, Suite 401
Phoenix, Arizona  85012
602-631-6555 (office) 480-241-7738 (cell)
sguthrie@email.arizona.edu